LIBRE Profile is an innovative system for measuring a return to life after burn injury.

Attempting to return to everyday life after a burn injury can be difficult, stressful, and emotionally challenging. While traditional rehabilitation strategies for burn survivors focus on physical recovery, Life Impact Burn Recovery Evaluation (LIBRE) Project focuses on the impact burn injuries have on social life.

LIBRE Profile is a computer-based questionnaire that can help burn survivors and clinicians track burn recovery, improve rehabilitation efforts, and identify areas where additional support is needed.

LIBRE Journey Study

The LIBRE Journey Study is developing social recovery trajectories using the LIBRE Profile questionnaire. These trajectories are similar to growth curves for kids and they will help burn survivors and their clinicians understand LIBRE Profile scores.

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Preschool LIBRE Study

The Preschool LIBRE Study is developing a computer-based questionnaire to assess the impact of burn injury on child health. This study will evaluate different health outcomes related to children’s physical and social recovery after a burn injury

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The LIBRE Profile: Assessing Burn Survivors' Social Participation

The video describes why and how we created the LIBRE Profile, as well as how it will be used once it’s ready to be distributed to the burn community. Watch this short video, we hope you enjoy it!

Burn Model Systems National Longitudinal Database

BHBIMS is dedicated to contributing to the Burn Model Systems (BMS) National Database, a prospective, longitudinal, multicenter research study that examines functional and psychosocial outcomes following burns. The BMS National Database consists of data collected from almost 4,000 adults and over 2,000 children with moderate to severe burn injury. In collaboration with the three other NIDILRR-funded BMS sites, we aim to conduct rigorous long-term research that:

  1. Leads to improved care and outcomes of individuals with severe burn injuries.
  2. Contributes to evidence-based rehabilitation interventions and clinical practice guidelines for persons with severe burns.
  3. Studies the longitudinal course and secondary effects of severe burn injuries.
  4. Identifies and evaluates trends over time.
  5. Establishes expected rehabilitation outcomes for burn survivors.
  6. Facilitates other projects, including clinical trials and population-based studies.
  • The other three BMS centers are the:
  • Northwest Regional Burn Model System in Seattle, Washington;
  • Pediatric Burn Injury Rehabilitation Model System in Galveston, Texas; and
  • North Texas Burn Rehabilitation Model System in Dallas, Texas.

We welcome the use of the BMS National Database by external researchers who share our goal of improving the lives of burn survivors. Please click here for details.

Visit the Burn Model System Data and Statistical Center website for more information.

To learn more, see our 2017 BMS National Database Facts and Figures:

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Burn Outcome
Questionnaires (BOQs)

BOQs are patient- and family-reported outcome metrics for children of all ages. The questionnaires are broken up into several categories:

    • ages 0-4
    • ages 5-18
    • ages 18-30 (young adult BOQ)
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Heterotopic Ossification Risk Scoring System

Heterotopic Ossification is a rare but severely debilitating complication of burn injuries. We developed a risk scoring system that can be used to predict heterotopic ossification at the time of admission to the hospital.

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Guidelines for Burn Care
Under Austere Conditions

A series of articles was authored by members of the American Burn Association dedicated to disaster preparedness. These articles specifically address how to carry on effective burn care following a mass casualty event.

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