Boston Harvard – Burn Injury Model System
HO BURN CALCULATOR
HO is a rare but severely debilitating complication of burn injuries. We developed a risk scoring system that can be used to predict HO at the time of admission to the hospital.
BURN SURVIVORS OF NEW ENGLAND
Monthly Support Group Meeting
on the Second Tuesday of Every Month
Spaulding Rehabilitation Hospital, 5th Floor Lantern Room
LIBRE PROFILE
The LIBRE Profile is dedicated to understanding and improving the social recovery of burn survivors
For more information visit LIBRE Profile or call 844-255-9987
Featured Videos
Peer Support After Burn Injury
This video, developed in collaboration with the Phoenix Society for Burn Survivors, explains how peer support can enhance recovery and quality of life for burn survivors and their loved ones. This 15-minute video features several burn survivors, family members, and clinicians who share their experiences with peer support and discuss the many resources available.
Exercise Following Burn Injury
This video, developed by the MSKTC, highlights three burn survivors who share the profound experience of beginning an exercise routine after burn injury. It also includes the perspectives of health care professionals at BHBIMS, who explain the importance of and strategies for exercising after burn injury.
BHBIMS 2018 Fall Newsletter - https://t.co/yTrqpi0hGP
Check out our Fall Newsletter! We have lots of updates on our studies and events! https://t.co/yTrqpi0hGP
Survivors as partners in research: “Nothing about us without us” at Formative review for Burn Model System @BURN_MS @BostonBurn_MS @shrinershosp @SpauldingRehab @MGHSurgery @Ameriburn @UWBurnDoc @ShrinersBoston @PSburnsurvivors 40% grant score related to survivor input!
Newsletters
Winter 2017 Issue
Holiday Party & Journal Club
With overviews of the BSONE Walk
Summer 2017 Issue
American Burn Association Conference Overview
With Personal Profile of Vivian Shie
Featured Publications
A Preliminary Study on qEEG in Burn Patients With Chronic Pruritus.
This study was undertaken to compare the electroencephalography (EEG) changes in burn patients having primary symptoms of chronic itching (pruritis) and their paired healthy subjects. There was evidence that chronic pruritus in burn subjects may be associated with brain reorganizational changes at the cortical level characterized by an EEG pattern.
Fatigue Following Burn Injury: A Burn Model System National Database Study.
This study's objective was to determine the frequency and severity of fatigue over time and to identify predictors of fatigue in the adult burn population. Fatigue symptoms are common after burns and many burn survivors continue to report symptoms at 2 years post-injury. Burn survivors did not return to pre-injury fatigue levels, highlighting the importance of understanding and monitoring fatigue.
Patient-reported Outcome Measures: A Stethoscope for the Patient History
This paper is a surgical perspective editorial article that looks at patient-reported outcome measures (PROMs) as powerful tools within the physician-patient connection. They found that patient’s active engagement in medical care through PROMs holds the potential to tailor the care process and overall health to individual biopsychosocial needs. Ultimately, if physicians and health care systems embrace the opportunity that PROMs present, the dual goals of value-based and patient-centered care can be achieved.
Our Collaborators
Knowledge Translation Center (MSKTC)
The MSKTC summarizes research, identifies health information needs, and develops information resources to support the Model Systems programs in meeting the needs of individuals with traumatic brain injury (TBI), spinal cord injury (SCI), and burn injury.
Burn Survivors of New England (BSONE)
The BSONE is a nonprofit organization that supports and empowers burn survivors and their families as they build active and engaged lives. Their efforts focus on bringing peer support to burn survivors and their families. They hold several annual events to help bring the burn survivor community together and raise funds to award scholarships to send New England Burn Survivors to the Phoenix World Burn Congress.
Phoenix Society
The Phoenix Society for Burn Survivors is the leading national nonprofit organization dedicated to empowering anyone affected by a burn injury. Through Phoenix SOAR (Survivors Offering Assistance in Recovery), World Burn Congress, Phoenix Education Grant, online peer support, and an online resource library, the Phoenix Society for Burn Survivors works to help burn survivors throughout their recovery process.
American Burn Association (ABA)
The ABA and its members are committed to improving the quality of care provided to burn patients by stimulating research, fostering prevention efforts, and providing continuing education courses, annual scientific meetings, and scientific publications.
International Association of Firefighters (IAFF)
The IAFF works to better fire safety, prevention, and education. It represents more than 303,000 full-time professional fire fighters and paramedics and is one of the most active lobbying organizations in Washington, DC.
National Fire Protection Association (NFPA)
The NFPA is a global nonprofit organization that is devoted to eliminating death, injury, and property and economic loss due to fire, electrical accidents, and related hazards. They do so by educating the public about fire safety, acting as advocates, supporting research, and training individuals on codes and standards.
Boston Firefighters Burn Foundation
The Boston Firefighters Burn Foundation is comprised of Boston Firefighters who, on their days off, provide both emotional and financial support to burn survivors and their families. They host fundraising events, build relationships, and provide services where needed.