Burns are incredibly challenging and often isolating injuries. Many survivors find peer support to be one of the most helpful resources in the recovery process. Peer support connects survivors and their families with others who have experienced burn injuries and who understand the many ups and downs of recovery. Peer supporters can listen, answer questions, offer practical advice, and promote a sense of belonging in the community. By sharing their stories, peer supporters inspire hope and offer examples of what life is like after a burn injury.
Don’t Know How to React to Burn Survivors? Libre Project Creates a Public Service Announcement (PSA) For Burn Survivors and the General PublicRead More
Peer support comes in many forms. In addition to group support meetings and individual support. Phone peer support is also available and the Phoenix Society offers an online peer support chat every Wednesday evening.
Meetings are on the 2nd Tuesday of every month at 6pm.
Spaulding Rehabilitation Hospital
300 First Avenue
Charlestown, MA 02129
5th Floor Lantern Room
Phoenix World Burn Congress is an annual, international conference that brings together over 900 burn survivors, their families, caregivers, burn care professionals, and firefighters. People come together to offer support, increase their knowledge of burn recovery, and share inspiring stories.
September 12-15, 2018
Grand Rapids, MI
The BSONE is a nonprofit organization that supports and empowers burn survivors and their families as they build active and engaged lives. Their efforts focus on bringing peer support to burn survivors and their families and they hold several annual events to help bring the burn survivor community together.
The Phoenix Society for Burn Survivors is the leading national nonprofit organization dedicated to empowering anyone affected by a burn injury. Through Phoenix SOAR (Survivors Offering Assistance in Recovery), World Burn Congress, Phoenix Education Grant, online peer support, and resource library, the Phoenix Society for Burn Survivors works to help burn survivors throughout their recovery process.
This video, developed by the MSKTC, highlights three burn survivors who share the profound experience of beginning an exercise routine after burn injury. It also includes the perspectives of health care professionals at BHBIMS, who explain the importance of and strategies for exercising after burn injury.
The LIBRE Project created a short video that is designed as a public service announcement (PSA) for the general public. The PSA titled demonstrates some of the difficulties encountered by burn survivors and provides a simple approach to creating a more positive and accepting environment.
This video, developed by the MSTKC, shares information about returning to work after sustaining a burn injury. In this video, Burn Model Systems Researchers share how they helped Ben Swanson, a burn survivor, transition back into work.
The LIBRE Profile is a tool used to assess the impact of a burn injury on social participation. This video describes why and how the LIBRE Profile was created.
Watch this demonstration of transcranial Direct Current Stimulation- tDCS, a non-invasive method of brain stimulation being investigated by the Boston-Harvard Burn Injury Model System in collaboration with the Spaulding Neuromodulation Lab for the relief of chronic pain and itch due to a previous burn injury.
The IAFF works to better fire safety, prevention and education. It represents more than 303,000 full-time professional fire fighters and paramedics and is one of the most active lobbying organizations in Washington, DC.
The NFPA is a global nonprofit organization that is devoted to eliminating death, injury, property and economic loss due to fire, electrical and related hazard. They do so by educating the public about fire safety, acting as advocates, supporting research and training individuals on codes and standards.