Burns are incredibly challenging and often isolating injuries. Many survivors find peer support to be one of the most helpful resources in the recovery process. Peer support connects survivors and their families with others who have experienced burn injuries and who understand the many ups and downs of recovery. Peer supporters can listen, answer questions, offer practical advice, and promote a sense of belonging in the community. By sharing their stories, peer supporters inspire hope and offer examples of what life is like after a burn injury.

#Just Smile

How do you react
To Burn Survivors

Don’t Know How to React to Burn Survivors? Libre Project Creates a Public Service Announcement (PSA) For Burn Survivors and the General Public

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Types of Peer Support

Peer support comes in many forms. In addition to group support meetings and individual support. Phone peer support is also available and the Phoenix Society offers an online peer support chat every Wednesday.

Monthly Support at
Spaulding Rehabilitation Hospital

Meetings are on the 2nd Tuesday of every month at 6pm.

Spaulding Rehabilitation Hospital
300 First Avenue
Charlestown, MA 02129

5th Floor Lantern Room

World Burn Congress

Phoenix World Burn Congress is an annual, international conference that brings together over 900 burn survivors, their families, caregivers, burn care professionals, and firefighters. People come together to offer support, increase their knowledge of burn recovery, and share inspiring stories.

October 4 - 7, 2017
Dallas, TX

Register Here!

Burn Survivors of
New England (BSONE)

The BSONE is a nonprofit organization that supports and empowers burn survivors and their families as they build active and engaged lives. Their efforts focus on bringing peer support to burn survivors and their families and they hold several annual events to help bring the burn survivor community together.

Phoenix Society For
Burn Survivors

The Phoenix Society for Burn Survivors is the leading national nonprofit organization dedicated to empowering anyone affected by a burn injury. Through Phoenix SOAR (Survivors Offering Assistance in Recovery), World Burn Congress, Phoenix Education Grant, online peer support, and resource library, the Phoenix Society for Burn Survivors works to help burn survivors throughout their recovery process.

Kevin Fitzgerald

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Muji Karim

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Karen Labonte

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Mylene Larsen

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George Pessotti

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Jerry Laperriere

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Diana Tenney

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Factsheets for Adults

  • Sleep Problems After Burn Injury
    Sleep problems are especially common right after burn injury and during the healing and recovery stages. Insomnia can come and go over the years and may require different solutions at different times. Everyone has a different experience after burn injury, and some of the following information may not apply to you.
  • Psychological Distress
    The purpose of this fact sheet is to describe some of the emotional recovery challenges that patients may face after sustaining a major burn injury.
  • Understanding and Improving Body Image after Burn Injury
    Major burn injuries can change how the body looks and functions and lead to body image distress. Body image is defined as how satisfied, comfortable and confident a person is with his or her appearance.
  • Managing Pain After Burn Injury
    Pain and discomfort are an unfortunate part of burn injury and recovery. Many of our patients tell us that ongoing pain continues to be a problem long after discharge from the hospital.
  • Social Interaction After Burn Injury
    Many burn injury survivors who have had a change in their physical appearance feel anxious about how people will react to them when they leave the hospital and go back into public places. The way people react (verbally and non-verbally) can make it more difficult to feel confident during social interactions. While some burn survivors are not bothered by the reactions of others, you may find it helpful to learn social skills to face these challenges successfully.
  • Employment After Burn Injury
    Returning to work after a burn injury can be an important phase of recovery that helps you return to a routine. Work not only provides you with an income and other benefits, but can also give you a sense of purpose and confidence that is critical in maintaining a higher quality of life.
  • Scar Management
    Burn survivors can become frustrated that they still have issues with scarring after their initial burn injury has healed. Hypertrophic burn scars (raised scars in the area of the original burn) are the most common complication of a burn injury and can limit a survivor’s ability to function as well as affect their body image. It is difficult to predict who will develop scarring. Research shows that less severe burns that heal in less than 14 days generally have no scarring. More severe burns heal in 14 to 21 days and put you at a risk of scarring. Burns that take more than 21 days to heal are at very high risk for scarring and may require skin grafting.
  • Itchy Skin After Burn Injury
    As skin heals from a burn injury, it may get itchy. Almost everyone recovering from major burns has problems with itching—especially on or around the burn, graft, or donor site. The medical term for itchiness is “pruritus” (proo-ri´tus).
  • Exercise After Burn Injury
    A burn injury causes stress to your body. Your heart and lungs may not work as well as before. Your bones may not be as strong. Remember that muscles get weak or smaller when they are not used— being on bed rest probably caused you to lose some muscle. For each day of bed rest people can lose 1% of their muscle.
  • Healthy Eating After Burn Injury (Adults)
    This factsheet is intended to inform people with burn injury and their families about nutrition during hospitalization and after they return home. Burn injury dramatically increases your nutrition needs. The larger the burn size, the more nutrients you need to heal

Factsheets for Children

  • Build Childs Resilience After Burn Injury
    Recovery from a burn injury can be difficult; however, there are many ways to support children during this process. You can help to build your child’s resiliency after the injury. Resiliency is the ability to overcome challenges and bounce back stronger. You should always consult your child’s medical team at your local burn center for help with these issues.
  • Return to School After Burn Injury
    Going back to school is a very important step in a child’s healing after a burn injury. Learning and being with friends is important to your child’s progress. It is normal for you or your child to feel stress and be worried about going back to school.
  • Healthy Eating After Burn Injury (Kids)
    This factsheet is intended to inform families of children with burn injury about nutrition during hospitalization and after they return home. Your child needs adequate nutrition to grow and develop. Having a burn injury dramatically increases the need for proper nutrition.

Exercise After Burn Injury

This video, developed by the MSKTC, highlights three burn survivors who share the profound experience of beginning an exercise routine after burn injury. It also includes the perspectives of health care professionals at BHBIMS, who explain the importance of and strategies for exercising after burn injury.

LIBRE: Just Smile

The LIBRE Project created a short video that is designed as a public service announcement (PSA) for the general public. The PSA titled demonstrates some of the difficulties encountered by burn survivors and provides a simple approach to creating a more positive and accepting environment.

Employment After Burn Injury

This video, developed by the MSTKC, shares information about returning to work after sustaining a burn injury. In this video, Burn Model Systems Researchers share how they helped Ben Swanson, a burn survivor, transition back into work.

LIBRE CAT

The LIBRE Profile is a tool used to assess the impact of a burn injury on social participation. This video describes why and how the LIBRE Profile was created.

transcranial Direct Current Stimulation (tDCS)

Watch this demonstration of transcranial Direct Current Stimulation- tDCS, a non-invasive method of brain stimulation being investigated by the Boston-Harvard Burn Injury Model System in collaboration with the Spaulding Neuromodulation Lab for the relief of chronic pain and itch due to a previous burn injury.

International Association of Firefighters (IAFF)

The IAFF works to better fire safety, prevention and education. It represents more than 303,000 full-time professional fire fighters and paramedics and is one of the most active lobbying organizations in Washington, DC.

National Fire Protection Association (NFPA)

The NFPA is a global nonprofit organization that is devoted to eliminating death, injury, property and economic loss due to fire, electrical and related hazard. They do so by educating the public about fire safety, acting as advocates, supporting research and training individuals on codes and standards.