Attempting to return to everyday life after a burn injury can be difficult, stressful, and emotionally challenging. While traditional rehabilitation strategies for burn survivors focus on physical recovery, Life Impact Burn Recovery Evaluation (LIBRE) Project focuses on the impact burn injuries have on social life.
LIBRE Profile is a computer-based questionnaire that can help burn survivors and clinicians track burn recovery, improve rehabilitation efforts, and identify areas where additional support is needed.
The LIBRE Journey Study is developing social recovery trajectories using the LIBRE Profile questionnaire. These trajectories are similar to growth curves for kids and they will help burn survivors and their clinicians understand LIBRE Profile scores.
The Baby LIBRE Study is currently in development. This study will assess outcomes relating to several key aspects of child health and functioning.
The video describes why and how we created the LIBRE Profile, as well as how it will be used once it’s ready to be distributed to the burn community. Watch this short video, we hope you enjoy it!
BHBIMS is dedicated to contributing to the Burn Model Systems (BMS) National Database, a prospective, longitudinal, multicenter research study that examines functional and psychosocial outcomes following burns. The BMS National Database consists of data collected from almost 4,000 adults and over 2,000 children with moderate to severe burn injury. In collaboration with the three other NIDILRR-funded BMS sites, we aim to conduct rigorous long-term research that:
We welcome the use of the BMS National Database by external researchers who share our goal of improving the lives of burn survivors. Please click here for details.
Visit the Burn Model System Data and Statistical Center website for more information.
BOQs are patient- and family-reported outcome metrics for children of all ages. The questionnaires are broken up into several categories:
Heterotopic Ossification is a rare but severely debilitating complication of burn injuries. We developed a risk scoring system that can be used to predict heterotopic ossification at the time of admission to the hospital.
A series of articles was authored by members of the American Burn Association dedicated to disaster preparedness. These articles specifically address how to carry on effective burn care following a mass casualty event.