Sun and warm weather will be here soon!

Sun and warm weather will be here soon!

Do you know how to protect your skin in the sun?

  RECOMMENDATIONS FOR SUN EXPOSURE FOR BURN PATIENTS      

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Learn about facial massage

Learn about facial massage

NEW! 23 step-by-step instructional videos

And many other range-of-motion exercises and stretches to help in the rehabilitation from burn injuries.

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The Future of Hand and Face Transplants

The Future of Hand and Face Transplants

National and Boston doctors discuss the future of transplants

Click here to read the Boston Globe article discussing the future of hand and face transplants for patients throughout the world, featuring Dr. Pomahac and burn survivors Carmen Tarleton and Dallas Wiens.

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NY Times Health Article on Itch

NY Times Health Article on Itch

Itching: More than skin deep

Read the article "Itching: More than skin deep" from the NY Times to learn more about causes and treatments of itch. If you are a burn survivor with itch, click on our "RESEARCH" tab to learn more about our study…

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Hot Topic Series: Employment after Burn Injury

Hot Topic Series: Employment after Burn Injury

Resources to help individuals with burn injury return back to work following injury.

Featured Video and more at www.msktc.org

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Interested in Research?

Interested in Research?

Researchers are looking into the effects of transcranial direct current stimulation (tDCS) on pain and itching after burn injury.

To learn more about the research at BH-BIMS, or to ask us a question, please contact us via our web form.

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News & Events

 
** DINNER DANCE, MAY 2, 6:00 pm** (Click here for details)

 Next Monthly Support Meeting:  Tuesday, May 12, 2015

6:00 pm - 7:30 pm

Spaulding Rehabilitation Hospital

Burn survivors, family members, friends and medical professionals are encouraged to attend 

Click here for 2015 Meeting Schedule and Details

 


 

Developing an Effective Tool to Measure Recovery of Burn Survivors

 

Excerpt taken from “Life After the Burn:
Developing an Effective Tool to Measure Recovery of Burn Survivors”,
Boston University School of Public Health News and Events 
 

Diana and Jerry out dancing with friends

LIBRE—the Life Impact Burn Recovery Evaluation—is creating an innovative computer-adaptive tool for measuring progress along the path to what Diana Tenney and other survivors call “the new normal.” For the past year, LIBRE researchers have held focus groups with burn survivors and conducted in-depth interviews to generate a comprehensive pool of questions about the aspects of recovery that aren’t purely physical.

“We’re interested in identifying what some of the barriers might be, and then possible intervention strategies,” said Lewis Kazis, professor of health policy and management. “We have an adage in the measurement world that if you can’t measure it you can’t change it. So much of this becomes a question of whether you can pinpoint the needs of a burn survivor and then begin to provide them—and clinicians—with that information.”

Full article can be accessed here.

Research

Do you have itch or pain due to a burn injury?


If you are over the age of 18, you may be eligible to participate in this research study. This study involves a method of non-invasive brain stimulation called Transcranial Direct Current Stimulation (tDCS), and is part of the Boston-Harvard Burn Injury Model System. For more information, contact Vivian Shie at vshie@partners.org or at 617-952-6155.

 

Living with Burn Injury - Slideshows

Burn and Social Interaction

Click here to view slideshow

 

Learn strategies for addressing social interactions after burn injury

Model Systems Knowledge Translation Center

 

Connect with NIDRR

Connect with the National Institute of Disability and Rehabilitation Resarch
The mission of the National Institute of Disability and Rehabilitation Research (NIDRR)  is to bring a high quality of care and improve the quality of life for people with disabilities. As part of their mission, the Burn Injury Model System contributes to the Burn Data Coordination Center - established in 1994 - gathering data from several national sites on burn care and health outcomes.

 

Connect with the MSKTC

The MSKTC has many resources available about the Burn Injury Model System, including helpful flyers and handouts about injury - and also the contact information for Model System sites nationwide.

 

New! Instructional Videos!

BH-BIMS and Spaulding Rehab Hospital have developed 23 step-by-step instructional videos for use in the rehabilitation of burn survivors.

Clinicians, caregivers and patients can view exercises and stretches for the ankle, knee, hip, wrist, elbow, shoulder, neck and face, including:

•       Abduction, Extension, Flexion of joints      
•       Grasp
•       Cervical Rotation
•       Facial Massage
•       Oral Splinting
 
Visit www.mghacademy.org/burncare to view the videos.

Viewers’ comments are important to us! After viewing the video(s) please let us know your thoughts by completing this brief survey.  (Also available on the burn care instructional video website)

Quick Reviews

New Research Summary
 
 
 
 

Recent Publications

The Station nightclub fire

These research articles examine the factors associated with chronic pain and emotional trauma in survivors of The Station nightclub fire, one of the deadliest fires in American history that occurred in February of 2003.

Trinh N-HT, Nadler DL, Shie V, Fregni F, Gilman SE, Ryan CM, Schneider JC.  icon Psychological Sequelae of Station Nightclub Fire PLos ONE 9(12):
e115013. doi: 10.1371/journal.pone.0115013

Egyhazi, R., Fregni, F., Bravo, G. L., Trinh, N. H. T., Ryan, C. M., & Schneider, J. C. icon Chronic Pain Following Physical and Emotional Trauma: The Station nightclub fire  Neurotrauma5 (2014), 86.            

Inpatient rehabilitation following burn injury

This retrospective study is the first to examine the rehabilitation outcomes of burn injury patients who required a second inpatient rehabilitation stay in comparison to burn injury patients who had only 1 inpatient rehabilitation admission. 

DiVita MA, Mix J, Goldstein R, Gerrard P, Niewczyk P, Ryan CM, Kowalske K, Zafonte R, Schneider JC

icon Rehabilitation Outcomes among Burn Patients with a Second Admission to an Inpatient Rehabilitation Facility.  PM R 2014 May 28. pii: S1934-1482(14)00241-X. doi: 10.1016/j.pmrj.2014.05.010. [Epub ahead of print]

Schneider JC, Mathews K, Ryan CM., Gerrard P, Goldstein R, DiVita MA, Niewczyk P, Ryan CM, Mix J, Kowalske K, Zafonte R, Schneider JC. Validity and Reliability of the FIM instrument in the inpatient burn rehabilitation population.

Arch Phys Med Rehabil. 2013 Aug;94(8):1521-1526.e4. doi: 10.1016/j.apmr.2013.02.019. Epub 2013 Mar 5

Purohit M, Goldstein R, Nadler D, Mathews K, Slocum C, Gerrard P, Niewczyk P, DiVita MA , Mix JM, Ryan CM, Zafonte R Kowalske K, Schneider JC.
Cognition in Patients with Burn Injury in the Inpatient Rehabilitation Population. 
Arch Phys Med Rehabil. 2014 Feb 28. pii: S0003-9993(14)00131-2. doi: 10.1016/j.apmr.2014.01.029. [Epub ahead of print]

 

Dr. Colleen Ryan and Dr. Tompkins authors of top-cited papers in burn care and research

Authors Jason J. Nam, et. al. of “Citation Classics in the Burn Literature During the Past 55 Years”  identified the 100 most cited, peer-reviewed burn-related publications produced in the past 55 years in the Journal of Burn Care & Research. Ryans and Tompkins were both lead authors on manuscripts that made the list of the 100 most-cited articles in burn care, 1955–2011.

Dr Ryan’s publication, “Objective estimates of the probability of death from burn injuries” from the New England Journal of Medicine ranked 12th on the list with 215 citations, while Dr. Tompkins’ publication, “Significant reductions in mortality for children with burn injuries through the use of prompt eschar excision” from Annals of Surgery ranked 91st with 90 citations.

Read the complete article here: icon Citation Classics in the Burn Literature During the Past 55 Years

 

Boston-Harvard Burn Injury Model System

RESOURCE OF THE MONTH:  RETURN TO WORK AFTER BURN INJURY                                

Returning to work is an important phase of recovery after burn injury. Our colleagues at the Northwest Regional Burn Model System have developed a comprehensive resource on Return to Work after Burn Injury.   Their website answers questions such as
·         Am I ready to return to work                                                                                                                           
·         How do I go about returning to work?
·         Employer's responsibilities
·         Disability benefits and insurance
 
Click here to learn more http://burnrehab.washington.edu/work                               
 

See also:  Consumer Factsheet on Employment after Burn Injury